Raising awareness of ME/CFS

This is a common disease, where many globally experience abuse from health & social care agencies because of the dominant biopsychosocial model.

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#RepostSave @very_rare_illness_warrior with @repostsaveapp ・・・ I’m one of the #millionsmissing through no choice of my own. No I don’t receive benefits- I receive entitlements, I worked & paid my contributions, which are supposed to help people like me when they are not able. I would trade with anyone, I was self employed working 7 days a week, 18 hour days & loved doing so. Now I draw the curtains to shut out the daylight I once loved. Imagine feeling like you have the flu ‘daily’ for years – no respite, then add light & sound sensitivity with or without a migraine, joint & muscle pains , worse still constant spasms. ••••••••••••••••••••••••••••••• Dry mouth, weekly ulcers, insomnia, gastrointestinal issues. Nausea, jaw pain, mood swings, cognitive problems, word searching, memory recall. ••••••••••••••••••••••••••••••• With all these issues you’d think I was visible. Standing out. No! I am not. I have slipped away from participating in life. I exist, I am here, existing – one of millions missing. I will however, continue to campaign for myself & millions of others who have been abandoned – left to the mercy of CBT & GET. I don’t know if I’m lucky to be refused GET, or too well informed to be conned? Even my rheumatologist commented that ME can’t be cured, (I’d informed my rheumatologist that a NHS physiotherapist boasted she ‘cures’ chronic fatigue too – with graded exercise) #mewarrior #pwme #spoonie#spooniewarrior #disability #disabilityawareness #mecfs #chronicillness #chronicpain #chronicmusclespasms #muchmorethanfatigue #meaction #canyouseemenow #meresearchuk #forwardme #meassociation #forgotten

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